Join our community of caretakers supporting loved ones with rare diseases. Connect with others facing similar challenges. Share experiences, resources, and encouragement. Together, we can make a difference in each other's lives. Fill out the form below to receive an email with the exclusive Zoom link for our monthly support group meetings.
 

Support Group Meeting Details:

 

 

• First Tuesday of each month at 12:00 PM EST and

• Third Thursday of each month at 8:00 PM EST.

• Starting January 7, 2025