top of page
Two Online
Meetings Monthly
Briefly introduce yourself and share something interesting with website visitors. Double click to edit the text.
Join our community of devoted rare disease caregivers. Connect with others facing similar challenges to share resources and encouragement. Alone we are rare, together we are strong. Fill out the form below to receive an email with the exclusive Zoom link for our monthly support group meetings.
Support Group Meeting Details:
• First Tuesday of each month at 12:00 PM EST
• Third Thursday of each month at 8:00 PM EST.
• Confidential, safe, and moderated.
bottom of page