Brodyn's Friends

Brodyn‘s friends is a 501(c)3 charitable organization that gives caring people like you the opportunity to make an immediate difference in the lives of children and families affected with NKH, Nonketotic Hyperglycinemia . All donations are used to fund the research being done to find a cure and better treatment options for this devastating rare disease.

Nora Jane Foundation

The Nora Jane Foundation is an official 501(c)(3) charitable organization. Our foundation is dedicated to providing NKH awareness and promoting fundraising efforts for NKH research.

John Thomas Foundation

Our mission is to help families affected by the NKH disease as well as fund research in hopes of finding a cure.

The Jack Richard Urban Foundation

The Jack Richard Urban Foundation was established in 2023 by Jack's parents, Joe and Molly (Mattern). The foundation's goal is to raise awareness for Non-ketotic hyperglycinemia (NKH) and to fund raise for a cure. The science is there- the funding is not.

Lucas John Foundation

Lucas John Foundation is a nonprofit organization focused on rare diseases. Lucas John Culp was born in 2018 and medically diagnosed with a very rare genetic condition, Non-ketotic hyperglycinemia (NKH). There are only approximately 500 cases in the world. NKH is considered an orphaned disease. Orphaned diseases do not receive government funding and research is solely funded by the families affected and their supporters.