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Leading the fight to end NKH

SUPPORTING THOSE IMPACTED, EVERY STEP OF THE WAY

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Committed to assisting those affected by NKH

We offer patient advocacy through awareness initiatives and caregiver support.
We also fund the vital research to advance NKH treatments

Patient Advocacy

Advocating for NKH Patients by spreading awareness

Caregiver Support

Rare disease support group for caregivers

Funding Research

Raising funds to further NKH Research in the US

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Bee-come Part of our Hive

Join our mailing list to stay up to date on our latest fundraising opportunities and research updates.

Aerodynamically, the bumble bee shouldn't be able to fly, but the bumble bee doesn't know it so it goes on flying anyway.

NKH Patient and Caregiver Resources

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"No-No" Med List

Instant Download of the NKH "No-No" Meds list

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NKH Resources

Research publications, contact information, and more.

Lisa Driver, MI

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NKH Registry

Official NKH Registry with CoRDS

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Patients and caregivers supported

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Studies Funded by the NKH Community

1,000,000

Raised by the NKH community

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Years of Experience

Shining Light on NKH
AWARENESS STARTS HERE

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Come together with us to end NKH and support those impacted by it.

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